"We hold these truths to be self-evident: that all men are created equal."

- United States Declaration of Independence

Tuesday, November 23, 2010

Massachusetts’ Civil Rights Crisis, Part 2 – The Five Fundamental Rights

Second Post – What Violations Look Like

This is the second in a series of posts that describe the ONLY law that protects basic civil rights in Massachusetts - a law that has been forgotten. Violations are the rule, not the exception. This post describes the (commonly seen) violations that do happen.

What do you see in your State or Country?

What Violations of the Five Fundamental Rights (5FRs) law look like:

Sadly, many of these violations are based on reality – they happen on a regular basis.

Violations of Fundamental Right #1 - Access to Telephones:
- Phones are in public places, such as hallways or dining areas.
- Phones are located near or at nurses' stations, so staff can monitor conversations; staff members listen in on calls.
- Calls are kept unreasonably short.
- Phones are shut off (often during ‘groups’); or private phone areas are locked.
- Staff will not provide money/assistance to make calls.

Violations of Fundamental Right #2 - Access to Mail:
- Mail is opened without the patient present.
- Mail is read by staff.
- Mail is opened for any reason beside suspected transmission of contraband.
- Staff refuses to provide writing materials, such as pen and paper, or postage, on request.

Violations of Fundamental Right #3 - Access to Visitors:
- Visiting hours and visits are kept extremely short.
- Visits are only allowed in common areas, such as dining rooms or hallways.
- Staff members are present during a visit.
- Visiting times are not flexible enough to accommodate patients and visitors.

Violations of Fundamental Right #4 - Humane Physical and Psychological Environment:
- Denial of a safe, private space for resting and sleeping.
- Observation by staff while bathing, using the bathroom, or dressing/undressing.
- Placement (esp. in group homes) with roommates who may endanger a patients’ health and wellbeing; staff is insensitive to trauma issues.
- Shared bathing facilities (i.e., group showers or toilets).

Violations of Fundamental Right #5 - Visits with Lawyers and Outside Care Providers:
- Patients can’t receive or refuse visits from attorneys, outpatient physicians, therapists or clergy.
- Staff won’t allow such visits to occur outside of normal visiting hours.
- On admission or on request afterwards, the patient isn’t given information about free legal services, or staff doesn’t help patients in contacting these services.
- An attorney, if given permission by the patient, is denied access to the client, his/her record; or staff responsible for treatment and care. Also, if that attorney isn’t allowed to attend meetings where the client is present.

Violations of Other Provisions of “Five Fundamental Rights” Law:
- The “Five Fundamental Rights” are not posted in a prominent place, or they are hard to understand or read. Non-English speakers can’t have the rights translated.
- A copy of these rights are requested, but staff refuses to provide it.
- Patients can’t wear their own clothes, keep possessions and money, or don’t have private storage space.
- Patients cannot refuse ECT.


Mental Health Legal Advisors Committee (Boston)

Intake Hours
8:30 a.m. to 1 p.m. - Mondays, Wednesdays and Fridays

Intake LinePhone: (617) 338-2345 press "1" Toll Free Phone:1-800-342-9092 press "1"

Email: MHLAC@mhlac.org

Disability Law Center (Protection and Advocacy agency in Massachusetts)

(Main) Office, Boston:
Phone: (617) 723-8455
Toll Free Phone: (800) 872-9992

TTY: (617) 227-9464
Toll Free TTY: (800) 381-0577
FAX: (617) 723-9125

Western Mass. Office, Northampton:
Phone: (413) 584-6337
Toll Free Phone: (800) 222-5619 Voice
TTY: (413) 582-6919
FAX: (413) 584-2976

E-mail: mail@dlc-ma.org

Center for Public Representation (Newton and Northampton)

Newton, MA Office:
Phone: (617) 965-0776
Fax: (617) 928-0971

Northampton, MA Office:
Phone and TTY: (413) 586-6024
Fax: (413) 586-5711

Email: info@cpr-ma.org


Disabled Persons’ Protection Commission (DPPC) 24-Hour HOTLINE:

Phone/TTY: 1-800-426-9009

The next post will look into the history of the law, and how and why it is so brazenly ignored.

Massachusetts’ Civil Rights Crisis, Part 2 – The Five Fundamental Rights

First Post – The Five Fundamental Rights Law

The landmark 2000 study “From Privileges to Rights,” published by the National Council on Disability contained these words:

Daniel Fisher, a psychiatrist, testified that some states, such as Massachusetts, had to pass legislation to ensure the human rights of people in institutions who are labeled with psychiatric disabilities, such as the right to make a phone call or have visitors, legislation that would not be necessary if people labeled with psychiatric disabilities did not lose their ordinary citizenship rights.

The law Dr. Fisher refers to is called the “Five Fundamental Rights” law. Sadly, twelve years after its passing, this law is still rarely enforced, and the appeals process is almost nonexistent – leaving thousands with no guaranteed civil rights - in hospitals and group homes.

This post will explain the Five Fundamental Rights (5FR) law. This law applies to Massachusetts only. However, many other states have the same or similar laws and/or regulations. What do you see happening in your State?

In the interest of readability, I am paraphrasing the law, and I’ve added bold type for emphasis. You can read the full language of the law here.

The “Five Fundamental Rights” (5FRs) Law:

Massachusetts General Laws, Chapter 123, Section 23

(As defined by Chapter 166 of the Acts of 1997, An Act Relative to Certain Rights of Persons with Mental Illness):

Rights of persons receiving services from programs or facilities of department of mental health

This law applies to all persons receiving services run or licensed by the Department of Mental Health, including all state and private hospitals, community mental health centers, and/or residential programs. These rights are to be exercised without fear of harassment or reprisal, including denial of appropriate treatment.

(a) The right to reasonable access to a telephone, to make and receive private calls. Assistance making calls must be available when necessary.

(b) The right to send and receive unopened and uncensored mail. On request, stamps and writing materials must be made available in reasonable quantities, as well as help writing and mailing letters.
(c) The right to receive visitors of one’s choice, daily and in private, at reasonable times. There must be some flexibility of visiting hours to accommodate the needs and wishes of individuals and their visitors.

(d) The right to a humane psychological and physical environment, including privacy and security in sleeping, dressing, bathing and toileting. This right does not require individual sleeping quarters.

(e) The right to receive or refuse visits and calls from an attorney, legal advocate, doctor, clergy member or social worker. These calls and/or visits can be outside of normal visiting hours, and can happen regardless of whether or not that person initiated or requested the call/visit.

Facilities must give access to attorneys working for Massachusetts’ Protection and Advocacy agency – the Disability Law Center in Boston; the Committee for Public Counsel Services, a State office; and any agency funded by the State’s Legal Assistance Corporation to provide free legal services. The facility must designate ‘reasonable’ times for attorney visits, and provide help in contacting them.

The facility must provide the name, address, and phone number of the legal agencies listed above on admission and on request at any time after.

If an attorney is contacted, and only with consent of the client, the attorney shall have access to:
• The client;
• His/her medical records;
• Staff responsible for care and treatment; and
• Any treatment/discharge planning meetings with the client.

Proposed sixth right:
(Filed as legislation in 2005, 2007 and 2009; to be refiled in 2011.)

(f) The right to daily access to fresh air and the outdoors.

Additional provisions of the law:

• The Five Fundamental Rights must be posted in appropriate, conspicuous places, in language that is easy to understand. Type size should be readable.
• On request, a copy of these rights must be provided to any client.
• If clients can’t read or understand English, the law must be translated.

• To wear one’s own clothes;
• To keep and use one’s own possessions;
• To keep and use a reasonable sum of one’s own money;
• To have private, individual storage space; and
• To refuse shock treatment (ECT) or lobotomy.

According to the law, any “dispute” regarding the 5FRs must be documented and “subject to timely appeal.” However (and this is the focus of our advocacy work), the appeals process is badly broken.

Exceptions (But NOT the rule!!!)
TEMPORARY Suspension of Rights

Suspension of Rights #1 (Telephones) and #3 (Visitors):
These exemptions apply only to inpatient facilities and can only be temporary. Suspension may occur only in the following circumstances:
• The suspension is on an individual basis;
• Suspension is issued by a hospital administrator or their designee;
• Suspension can only occur if there is a serious risk of ‘harm’ to self or others. The reason for suspension must be documented, and suspension can only last as long as the potential ‘harm’ exists.
• If use of the phone or visits cause ‘significant disruption’ in the functioning of the unit.

Suspension of Right #2 (Mail):
If a hospital administrator or his/her designee has ‘good cause’ to believe that a patient is receiving ‘contraband’ (i.e., drugs or weapons) through the mail, (s)he may open and inspect such mail.

However, if this is done, the mail must be opened in front of the patient, and staff may not read the mail. The purpose for opening must be documented.

Suspension of Additional Provisions of the Law:
Any of these rights can be denied by hospital administrators or their designees, provided that the reasons for denial are recorded in the client’s record.

What do you see happening in your state or country? Your observations are very important - please post!!!

Sunday, November 21, 2010

Introducing the Civil Rights Poll!!

I’ve added an interactive poll on the right-hand side. The answer topics are based on the answers received from an earlier poll, conducted for the Facebook group with the same name as this blog. Please contribute; the survey is confidential. If there are any topics missing, please let me know!

Thank You!!!

Wednesday, November 17, 2010

New stories of violations in Mass.

Coming very shortly: Part Two of ‘Massachusetts’ Civil Rights Crisis,’ looking at the basic rights law in Massachusetts.

Here are two recent anonymous online posts, found on Citysearch.com, regarding Arbour Hospital, the facility in Massachusetts we are focusing our advocacy efforts on. Please be aware that it may be disturbing.

These are just some stories that demonstrate the egregious and criminal nature of the discrimination the consumer/survivor/peer community experiences.

Should Be Shut Down

If I could give this place negative stars, I would. My husband was in there for several days recently--he was sent because they were the only place that had a bed and took his awful insurance plan--and he was completely traumatized. When he arrived they were fumigating his floor for bedbugs and they put him on another floor where he had no bed and no staff knew who he was.

He was given no information, no one was friendly, he was seen for 30 minutes total in 48 hours, the other patients were all violent and very loud, where my husband was simply depressed. There were fights in the hall that were slow to be broken up. Several patients were doing drugs in his room that one had smuggled in. Security was lax and they forgot to give him his medication for 36 hours.

Further, this place is dirty, dank and disgusting, the staff were extraordinarily rude to me with the exception of two night male nurses and the receptionist who gradually warmed to me. The nurses by and large seemed like they should be admitted.

My husband's case worker took 6 hours to call me back on the first day and then refused to come upstairs and meet with me, saying he was too busy. The second day, when he again refused and I said I would wait in the lobby until he was free, he accused me of harassing him. I don't think my husband's outside Psych received a call back until 8 hours had passed.

The only bright spot in this was the case worker's manager (who I escalated my concerns to) who was very kind, apologized for the case worker, and worked with me to get my husband transferred to McLean. We were very very lucky-- If I had not spent 36 straight hours on the phone and kept on despite being repeatedly told no, I never would have been able to transfer him. As it was, if he'd spent one more day there, insurance would have refused to move him.

If your loved one needs to go into the hospital, research ahead of time and go directly to that hospital. Do not ever allow them to take your loved one to Arbour. It is a mystery to me how anyone could ever get better there. I recommend McLean, which is like day after night.

the biggest mistake I made as a parent

I have never had to bring my child to a mental health facility before. Arbour was the first one we were told was open and to go. The staff not only did not understand a thing I was saying but they treated my child who was so scared like a piece of discarded trash. Their idea of family therapy was to put an entire family of divorced mom and dad and only one extension of my ex's family in the room with my daughter and myself and the social worker led my daughter to actually turn on me as a parent. In addition I will also make it very clear in this posting that the social worker who was supposed to help my daughter who is under aged actually told my child on a one on one meeting that my child should just call someone else and see if she could live with them. Said social worker told my child that she didn't think my daughter should live with either me or my ex husband. It not only disturbed my daughter and limited her trust in people and therefore did not assist in her recovery but it also shows me that it is AMAZING how these people think they know a child in less than 7 days....who does that? Not only do I think that you should refuse to send a loved one to this facility but I think that the adolescent ward should not even exist.